So on Tuesday we went to the neurologist. Caleb did a great job while he got weighed on the big boy scale, his height measured against the wall and his blood pressure taken. He's a pretty healthy boy. And got lots of compliments on his darling smile.
The neurologist talked to me and examined him. She viewed the videos and said that the last one looked like it could have been a complex partial seizure. She said though, that she wasn't really sure what it was. So, she is requesting that we do an EEG to rule out anything assymetrical. Of course, he hasn't really had those "seizure-like" movements very often. He's done it probably five or six times since May, which isn't much at all and so it's likely that the EEG won't pick up anything at all. This is kind of what I expected from his appointment and it's good news that it's probably nothing to worry about. He is developing well, which is also a good sign as well. After the EEG, she will call me and let me know if it was normal. If it shows any abnormalities then she will want to see him again and she'll likely have to do an MRI or a CT scan (both of which he'll have to be put under for). This outcome is unlikely. But, she will also call if it's normal. If it is normal, she will not need to see me and we'll continue on as normal. She did say that he could just be fixing himself, which is good. But she also mentioned that seizures are like riding a bicycle. At first it's hard to learn how to ride, just as it's hard for your body to seize. But, as you gain more practice, it's easier and easier- so the seizures can become easier and easier. Anyway, overall, she seemed optimistic that it's nothing to worry about and I felt that it was a good appointment.
Today, we went to the allergist. This appointment was a little more frustrating for me. According to the allergy test that they did today, Caleb has a minor raspberry allergy. That's it. He is not allergic to anything else they tested for. Sounds great, right? Well, it's not because Caleb has problems with his bowels and I feel like there is nothing I can do for him. If he had an allergy to something then I could help by avoiding those things. It will make meal times easier. He is definitely starting to notice that he is eating something different from Jeff and I and wants what we have and now he can eat those things. So, he'll definitely be happy about that. The doctor said that he just has sensitive bowels essentially and that and the reflux will eventually get better. In the meantime, he told me to let him eat whatever he wants. He did say to add things slowly so as not to overwhelm his system. He also mentioned that sometimes people can get diarrhea from too many sugars and combinations of things- not sure what that means.
So today, I gave him some dairy for the first time. For a snack after lunch, I decided to give him some blueberry yogurt bites. He ate them and loved them. I was happy that he could eat them. A little while later though, he threw up. Really?! So frustrating. So, he's not allergic to dairy and yet it upsets his stomach. Anyway, I guess his body just has to get used to having it.
As far as environmental allergies- again, nothing showed up. However, he said it was likely that he was allergic to something they didn't test for. He has all of the symptoms of having allergies: allergic shiners, congestion, etc. So, he put him on Nasonex for four weeks and then we'll go back.
By the way, Caleb did fabulous at the allergist. He only cried at the very end of pricking because he was tired of being held, but he sat there for most of it. Such an awesome baby. :)
So all in all, Caleb is doing well and we have nothing to be concerned about. We'll just need to be patient as his body/ digestive system learns how to properly work. Hopefully, it will happen quickly because it's sad to see my sweet boy suffering because of belly aches.
Oh and on a positive note, Caleb got to ride a horse for the first time today. He loved petting the horse and was so gentle, it was precious! :) I need to keep my camera with me at all times so I can catch moments like that.
Bleh. I hate when you find out "nothing" is wrong when there clearly is something. We are going through that with my son. There are all kinds of options for diets that may or may not help, but I'm stuck on overwhelmed right now. :)Good luck with your son!
ReplyDeleteSounds like a happy boy! My friends little boy had the same problems, so he may not be allergic but you could try an elimination diet (her little boy had gluten intolerance). I have never had dairy tested but when I eat it gas and upset stomach occurs. If you are eating anything processed, anything not grown and picked from the earth or an animal, it usually has added sugar like your doctor said. Another thing that helped my husband get rid of acid reflux is a glass of fresh lemon juice daily, and eating more green veggies in every meal, hide them in smoothies, ground up with eggs in omelette or stir fry. food helps with your health once you know what your body can tolerate! Hope he improves!
ReplyDeleteMy son couldn't have dairy until he was 2. Good luck.
ReplyDeleteHang in there. Just reading your post, I had flashbacks to Adam. Caleb is very young to have accurate allergy testing done. So, don't think that the test was 100% accurate. Has he had a blood test for allergies yet? I would try that, if a doctor will do it for you. Again, it may not be accurate. If not, remember there is a definite difference between an allergy and an intolerance, but they can make you equally sick. When adding dairy to the diet, try lactose free stuff first. Cabot has a whole line of lactose free cheeses. See how he does with those. Or try Lactaid Milk. If he still vomits, you know he does have an allergy, just the testing wasn't accurate. Adam was tested for his food allergies by two different doctors, using two different methods. One doctor's test showed he was allergic to 35 food items. The next doctor's test showed he wasn't allergic to anything, that was after he broke out in hives at our pediatrician's office from a vaccine. You know him best as his mother. If you know a food makes him sick, then avoid it. There are lots of substitute items you can find for him if needed! Trust me!
ReplyDeleteHey DeAnna! When Makenzie (my oldest) was a baby, she had to get a CT scan, EEG and MRI because the doctor thought she might be having seizures. They did the CT scan first and said it was "slightly abnormal" so we did the EEG and then she was sedated for an MRI. All was normal with the EEG and MRI. Nothing ever happened after all those tests. Today we joke that the CT scan was abnormal because she's so smart. :) Really though, she is one crazy smart cookie. I hope all turns out normal for you guys, too! Be strong through the EEG & MRI (if you do one). It breaks your heart seeing your baby like that, but just know he will be fine and you will be fine. :) Good luck!
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